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Canada: ‘She died because of red tape’: family says lifesaving drug could have saved hep C patient

Hepatitis C Blog Posted on November 11, 2014 by HCV AdvocateDecember 1, 2015

An Ottawa woman died of complications from hepatitis C because she could not
afford a lifesaving drug that the province does not yet cover, her family says.

Brenda Peever, 60, was hospitalized on Nov. 2 with late-stage liver cirrhosis
and died two days later. She could not afford the newly approved drug, Sovaldi,
which has a 90 per cent cure rate.

Health Canada approved Sovaldi in January, but it is not yet covered by the
Ontario Health Insurance Plan (OHIP). Peever’s doctors had told her that she
was a good candidate for the drug, which costs $654 per pill.

Read more: http://www.ctvnews.ca/health/she-died-because-of-red-tape-family-says-lifesaving-drug-could-have-saved-hep-c-patient-1.2096531#ixzz3InZh2YAN
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Tagged access to treatment, Canada, obituary, Pharmacare, Poverty

Former TOTO Singer FERGIE FREDERIKSEN Dead At 62

Hepatitis C Blog Posted on January 20, 2014 by HCV AdvocateJanuary 20, 2014

Melodic rock singer Dennis Hardy “Fergie” Frederiksen passed away yesterday (January 18) after a lengthy battle with liver cancer. He was 62 years old.

Frederiksen was best known as the former vocalist of TOTO (on the “Isolation” album, released in 1984), as well as his involvement involved in a lot of other outstanding musical projects: TRILLION, LEROUX, FREDERIKSEN/PHILIPS, MECCA, FREDERIKSEN/DENANDER and DAVID LONDON (solo album, under pseudonym). In 1999 he debuted as a solo artist with “Equilibrium”, an album which garnered great reviews in Europe and Japan and since then he has been offering quality melodic rock music to his legion of fans.

Read more at http://www.blabbermouth.net/news/former-toto-singer-fergie-frederiksen-dead-at-62/#U16ZFPBVecwd8jBo.99

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Tagged Fergie Fredriksen, Liver cancer HCC, obituary

Obit: Remembering Ken Thomson

Hepatitis C Blog Posted on September 1, 2013 by HCV AdvocateSeptember 1, 2013

Obit: Remembering Ken Thomson

I am sad to announce the passing of another great hepatitis C activist: Ken Thomson of ANKORS and the Pacific Hepatitis C Network.

I knew Ken when I was with HepCBC and know how hard and tirelessly he has worked for the HepC community over the last 12 years. He will be sorely missed.

Please click here to read more  -CD

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Tagged activism, ANKORS, Canada, Ken Thomson, obituary

R. Palmer Beasley dies at 76; linked hepatitis B to liver cancer

Hepatitis C Blog Posted on August 28, 2012 by HCV AdvocateAugust 28, 2012

Dr. R. Palmer Beasley, an epidemiologist whose pivotal research on hepatitis B in Taiwan first linked the virus to liver cancer, died Saturday of pancreatic cancer at his home in Houston. He was 76.

His death was announced by the University of Texas Health Science Center School of Public Health in Houston, where he had been dean from 1987 to 2005.

Beasley made his mark in the 1970s with a series of studies that proved the cancer
link and also discovered how Asian children were infected with
hepatitis B during childbirth by their mothers who were carriers.

Read more…..

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Tagged HBV, Liver cancer HCC, obituary, Research and Discoveries

In Memoriam: John Plater

Hepatitis C Blog Posted on July 30, 2012 by HCV AdvocateJuly 30, 2012

PLATER, JOHN CHARLES

On July 28, 2012, Canada lost a tireless advocate and
champion for human rights. John Charles Plater was born on June 1, 1967. When
he was one he was diagnosed with severe Hemophilia A, but learned to thrive
with the disorder. John died on July 28, 2012 at Toronto General Hospital from
complications caused by HIV and Hep C. He was 45. 
Born in Collingwood, Ont. and raised in Craigleith, John
graduated with a BA in political science from the University of Toronto and an
LLB from Osgoode Hall Law School. Called to the Bar in 1998 he practiced with
ARCH: A Legal Resource Centre for People with Disabilities until 2000 when he
started his own law practice. 
John was committed to making life better for all. He worked
to ensure the safety of the blood system, help lead the call for the Krever
inquiry and to get compensation for people who had acquired HIV and Hep C
through tainted blood. He was a champion for HIV treatment for all and opposed
criminalization of HIV. 
John served at many levels in the Canadian Hemophilia
Society. He served as co-chair of the Ontario Advisory Committee on HIV/AIDS,
Chair of the Ontario Hepatitis C Task Force, and Co-chair of the Ministerial
Advisory Council on the Federal Initiative on HIV/AIDS. He chaired the HIV/AIDS
Community Advisory Panel of St. Michael’s Hospital for several years and was
briefly involved on the Board of the HIV/AIDS Legal Clinic of Ontario. He was
also active at Thornbury First Baptist Church, serving as Moderator and chair
of the Deacons. 
John and his wife Karen (Watts) lived on a small hobby farm
in the Beaver Valley, together with his mother Margaret, 30 sheep, six
chickens, four horses, Lucy the cat, and Mikey the dog. He was predeceased by
his father Donald. John will be greatly missed by sister Heather, partner
Patrick and children Noah and Eli; in-laws George and Prue Watts;
brother-in-law Mark, wife Patti, children Ethan, Hayden and Selina; and
brotherin- law Brent, wife Lisa, children Taylor, Emma and Zachary. He is also
beloved by aunts, uncles and cousins across Ontario and Scotland. 
Family will receive friends at the Beaver Valley Community
Centre in Thornbury on Wed. Aug 1, 2012 from 2-4 pm and 7-9 pm. where the
funeral will be conducted on Thursday at 1:30 pm. with interment to follow at
Thornbury-Clarksburg Union Cemetery. As your expression of sympathy, donations
to the Canadian Hemophilia Society, the Beaver Valley Outreach or a charity of
your choice would be appreciated and may be made through the Ferguson Funeral
Home, The Valley Chapel, PO Box 556, Thornbury, ON N0H 2P0 (519-599-2718) to
whom arrangements are entrusted. 
www.fergusonfuneralhomes.ca
http://www.fergusonfuneralhomes.ca/Documents/LTD-Notice.pdf
=========================
http://www.thornbury.ca/clientdetails.php?Beaver-Valley-Community-Centre-1259
(Map)
Canadian Hemophilia Society
http://www.hemophilia.ca/en/

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Tagged Advocacy, obituary

Microbiologist Irving Millman, 88, helped develop hepatitis B vaccine

Hepatitis C Blog Posted on April 26, 2012 by HCV AdvocateApril 26, 2012

Irving Millman, a microbiologist who played an instrumental role in
developing the hepatitis B vaccine, an innovation recognized as one of
the most important medical advances of the latter 20th century and one
that has saved millions of lives, died April 17 at Sibley Memorial
Hospital in the District. He was 88.

The cause was complications from internal bleeding, said his
daughter Diane Millman. He had lived in Washington for the past decade.

Read more….

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Tagged HBV, obituary, Vaccine

In Memoriam: Michael Carden 1971-2012

Hepatitis C Blog Posted on April 12, 2012 by HCV AdvocateApril 12, 2012

Michael Carden was born in Sterling, Illinois.  He graduated from JH Rose High School in Greenville, NC in 1989.  He
attended NC State and graduated Summa Cum Laude with dual degrees in
Psychiatry and English in 1996, after which he went on to obtain dual
Masters Degrees in Rehabilitation and Substance Abuse Counseling from
East Carolina University.  He moved to New York City in
2001 and quickly found work with groups advocating public health for sex
workers and injection drug users.  Most recently, he was
Project Director at SUNY Downstate Medical Center in Brooklyn, NY and
had a joint position at The Center for the Study of Hepatitis C at Weill
Cornell Medical College.  Michael provided medical and
supportive services to people who use drugs and oversaw an NIH funded
project evaluating the effectiveness of an integrated, multidisciplinary
care model for delivering hepatitis C medical care and antiviral
treatment to active drug users.  His passion was in serving others and Michael has been called a ‘crusader’ by experts in his field.    
Michael was an advocate to the fullest, and his caring and gentle ways with patients were unparalleled.  He
was on the Board of Trustees of the Washington Heights Community
Outreach, Resources, Needle Exchange and Harm Reduction (CORNER) Project
in New York City, courageously fighting for the rights of the
underserved and aiding patients in obtaining safe, clean needles to
prevent the spread of infections like hepatitis C and HIV.  He
was the Chair of the Board of Directors of the New York Harm Reduction
Educators (NYHE) organization, vigorously advocating for social justice
and aiming to deliver health and social services to low-income persons
who use drugs, their loved ones and their communities.  He
served as past President of the National Hepatitis C Advocacy Council,
was a member of the Hepatitis C Fair Pricing Coalition, served on the
Steering Committee for the National Viral Hepatitis Roundtable, and was a
member of the Hepatitis C Community Advisory Board, where he provided
input to pharmaceutical companies regarding drug development programs
and their impact on the poor.

Michael
was a loving son, brother, uncle and friend.  He will be fondly
remembered and sorely missed by his colleagues, patients and friends. 

Read more testimonials here

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Tagged Advocacy, Harm Reduction, obituary

DeVenne dies of cancer

Hepatitis C Blog Posted on August 31, 2011 by HCV AdvocateAugust 31, 2011

Nova Scotia’s politicians have lost one of their sharpest critics and this newspaper one of its more prolific letter writers.

Bruce DeVenne died Saturday of liver cancer.

Personal note from CD:  Bruce was a major source of inspiration and a driving force behind hepatitis C advocacy in Canada. Although ill he worked tirelessly on behalf of others fighting for the rights of hemophiliacs and other victims of  bad blood policy in Canada.  He was a friend, an inspiration and a real hero.  Thank you Bruce, you will be remembered.

Read Bruce’s Story Here


Read more

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Tagged Advocacy, Liver cancer HCC, obituary, Transmission and Prevention

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